Ehlers Danlos Syndrome: A case report

Anjali Kumar, Scott T. Stoll, Kendi Lee Hensel

Research output: Contribution to journalArticle

Abstract

There is paucity in osteopathic literature on the management of Ehlers Danlos Syndrome. Treatment of patients with EDS proves a challenge, as there is no cure for the condition. These patients need several treatment modalities simultaneously to take care, not only of their chronic pain, but the often equally important aspect of psychosocial well being. A multidisciplinary approach is required to help the patients limit their disability, cope with the disease, and rehabilitate them in their chosen profession. The patient we saw exhibited many of the classic issues of EDS. She was in pain and was frustrated with the lack of cure and loss of employment. In order to manage her symptoms, she should be prescribed heel lift of the appropriate size. With the prescribed lifts, her sacral tilt should improve, which in turn should improve her mild scoliosis. Her significant right knee pain could be secondary to her surgery, but it could also be due to a longer right leg. A heal lift in the left shoe should remove the added stress on the right leg and improve the pain in right knee and hip. OMT should help the tissues and ligaments to adapt to changes in the posture following the use of a heal lift. Continuous assessment of the patient's pain and specific treatments to alleviate the pain, should go a long way in making the patient comfortable. EDS is not a rare phenomena. It is estimated to occur in about 1 in 5000 people, regardless of race or gender. Of the known types of EDS, hopefully the biochemical disorders will be amenable to treatment in the future. Until then, osteopathy provides the tools and techniques to help patients cope with the ramifications and complications of Ehlers Danlos Syndrome.

Original languageEnglish
Pages (from-to)26-28
Number of pages3
JournalAAO Journal
Volume17
Issue number2
StatePublished - 1 Jun 2007

Fingerprint

Ehlers-Danlos Syndrome
Pain
Leg
Knee
Shoes
Heel
Scoliosis
Pain Measurement
Therapeutics
Posture
Ligaments
Chronic Pain
Hip

Cite this

Kumar, A., Stoll, S. T., & Hensel, K. L. (2007). Ehlers Danlos Syndrome: A case report. AAO Journal, 17(2), 26-28.
Kumar, Anjali ; Stoll, Scott T. ; Hensel, Kendi Lee. / Ehlers Danlos Syndrome : A case report. In: AAO Journal. 2007 ; Vol. 17, No. 2. pp. 26-28.
@article{aeee931f4d0d4ce091e173ce0d39153c,
title = "Ehlers Danlos Syndrome: A case report",
abstract = "There is paucity in osteopathic literature on the management of Ehlers Danlos Syndrome. Treatment of patients with EDS proves a challenge, as there is no cure for the condition. These patients need several treatment modalities simultaneously to take care, not only of their chronic pain, but the often equally important aspect of psychosocial well being. A multidisciplinary approach is required to help the patients limit their disability, cope with the disease, and rehabilitate them in their chosen profession. The patient we saw exhibited many of the classic issues of EDS. She was in pain and was frustrated with the lack of cure and loss of employment. In order to manage her symptoms, she should be prescribed heel lift of the appropriate size. With the prescribed lifts, her sacral tilt should improve, which in turn should improve her mild scoliosis. Her significant right knee pain could be secondary to her surgery, but it could also be due to a longer right leg. A heal lift in the left shoe should remove the added stress on the right leg and improve the pain in right knee and hip. OMT should help the tissues and ligaments to adapt to changes in the posture following the use of a heal lift. Continuous assessment of the patient's pain and specific treatments to alleviate the pain, should go a long way in making the patient comfortable. EDS is not a rare phenomena. It is estimated to occur in about 1 in 5000 people, regardless of race or gender. Of the known types of EDS, hopefully the biochemical disorders will be amenable to treatment in the future. Until then, osteopathy provides the tools and techniques to help patients cope with the ramifications and complications of Ehlers Danlos Syndrome.",
author = "Anjali Kumar and Stoll, {Scott T.} and Hensel, {Kendi Lee}",
year = "2007",
month = "6",
day = "1",
language = "English",
volume = "17",
pages = "26--28",
journal = "AAO Journal",
number = "2",

}

Kumar, A, Stoll, ST & Hensel, KL 2007, 'Ehlers Danlos Syndrome: A case report', AAO Journal, vol. 17, no. 2, pp. 26-28.

Ehlers Danlos Syndrome : A case report. / Kumar, Anjali; Stoll, Scott T.; Hensel, Kendi Lee.

In: AAO Journal, Vol. 17, No. 2, 01.06.2007, p. 26-28.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Ehlers Danlos Syndrome

T2 - A case report

AU - Kumar, Anjali

AU - Stoll, Scott T.

AU - Hensel, Kendi Lee

PY - 2007/6/1

Y1 - 2007/6/1

N2 - There is paucity in osteopathic literature on the management of Ehlers Danlos Syndrome. Treatment of patients with EDS proves a challenge, as there is no cure for the condition. These patients need several treatment modalities simultaneously to take care, not only of their chronic pain, but the often equally important aspect of psychosocial well being. A multidisciplinary approach is required to help the patients limit their disability, cope with the disease, and rehabilitate them in their chosen profession. The patient we saw exhibited many of the classic issues of EDS. She was in pain and was frustrated with the lack of cure and loss of employment. In order to manage her symptoms, she should be prescribed heel lift of the appropriate size. With the prescribed lifts, her sacral tilt should improve, which in turn should improve her mild scoliosis. Her significant right knee pain could be secondary to her surgery, but it could also be due to a longer right leg. A heal lift in the left shoe should remove the added stress on the right leg and improve the pain in right knee and hip. OMT should help the tissues and ligaments to adapt to changes in the posture following the use of a heal lift. Continuous assessment of the patient's pain and specific treatments to alleviate the pain, should go a long way in making the patient comfortable. EDS is not a rare phenomena. It is estimated to occur in about 1 in 5000 people, regardless of race or gender. Of the known types of EDS, hopefully the biochemical disorders will be amenable to treatment in the future. Until then, osteopathy provides the tools and techniques to help patients cope with the ramifications and complications of Ehlers Danlos Syndrome.

AB - There is paucity in osteopathic literature on the management of Ehlers Danlos Syndrome. Treatment of patients with EDS proves a challenge, as there is no cure for the condition. These patients need several treatment modalities simultaneously to take care, not only of their chronic pain, but the often equally important aspect of psychosocial well being. A multidisciplinary approach is required to help the patients limit their disability, cope with the disease, and rehabilitate them in their chosen profession. The patient we saw exhibited many of the classic issues of EDS. She was in pain and was frustrated with the lack of cure and loss of employment. In order to manage her symptoms, she should be prescribed heel lift of the appropriate size. With the prescribed lifts, her sacral tilt should improve, which in turn should improve her mild scoliosis. Her significant right knee pain could be secondary to her surgery, but it could also be due to a longer right leg. A heal lift in the left shoe should remove the added stress on the right leg and improve the pain in right knee and hip. OMT should help the tissues and ligaments to adapt to changes in the posture following the use of a heal lift. Continuous assessment of the patient's pain and specific treatments to alleviate the pain, should go a long way in making the patient comfortable. EDS is not a rare phenomena. It is estimated to occur in about 1 in 5000 people, regardless of race or gender. Of the known types of EDS, hopefully the biochemical disorders will be amenable to treatment in the future. Until then, osteopathy provides the tools and techniques to help patients cope with the ramifications and complications of Ehlers Danlos Syndrome.

UR - http://www.scopus.com/inward/record.url?scp=34347207226&partnerID=8YFLogxK

M3 - Article

AN - SCOPUS:34347207226

VL - 17

SP - 26

EP - 28

JO - AAO Journal

JF - AAO Journal

IS - 2

ER -

Kumar A, Stoll ST, Hensel KL. Ehlers Danlos Syndrome: A case report. AAO Journal. 2007 Jun 1;17(2):26-28.